The documentary “I Am: Celine Dion” will follow the singer amid a diagnosis of stiff person syndrome: what is the disease?


This article is provided for informational purposes only and is not a substitute for professional medical advice, diagnosis or treatment. Contact a qualified health care professional before engaging in physical activity or changing your diet, medications, or lifestyle.

An upcoming documentary titled An upcoming documentary titled

An upcoming documentary titled “I Am: Celine Dion” will focus on the singer’s life and career amid her diagnosis of stiff person syndrome. (Photo by: Charles Sykes/Bravo/NBCU Photo Bank via Getty Images)

Celine Dionlife and career amid his diagnosis Stiff person syndrome should be the subject of a future documentary.

Worldwide rights to the film, titled “I Am: Celine Dion,” have officially been awarded to Amazon MGM, according to The Hollywood Reporterwhich indicated that the film would be released on Prime Video with a currently unknown release date.

“This intimate exploration takes viewers on a journey into Céline’s past and present as she reveals her battle with Stiff Person Syndrome (SPS) and the lengths she went to to continue performing for her fans. beloved and loyal fans,” said a press release issued Tuesday. sharing. “The documentary captures the never-before-seen private life of a global megastar.

“‘I Am: Celine Dion’ captures over a year of filming as the legendary singer journeys through her journey toward living an open, authentic life in the midst of illness. “

Dion, 55 years old, shared her SPS diagnosis at the end of 2022. A press release at the time indicated that this rare disease, which causes severe and persistent muscle spasms, “prevents him from playing”.

Dion first shared her diagnosis of stiff person syndrome in December 2022. (Photo by Samir Hussein/Redferns)Dion first shared her diagnosis of stiff person syndrome in December 2022. (Photo by Samir Hussein/Redferns)

Dion first shared her diagnosis of stiff person syndrome in December 2022. (Photo by Samir Hussein/Redferns)

Illness forced the Quebec-born superstar to cancel the remainder of her Courage World Tour in spring 2023. While the tour was scheduled to take place in Europe from August 26, 2023 to April 22, 2024, the singer ultimately decided to cancel the remainder shows.

“As much as it breaks my heart, it’s best that we cancel everything until I’m really ready to go back on stage…I’m not giving up,” Dion said. wrote in a May 26, 2023 article on X, formerly known as Twitter.

The Canadian singer’s sister, Claudette Dion, said GOOD MORNING! CanadaThat summer, Céline “did everything to get well. She’s a strong woman.”

In December, Claudette followed up with her fans by telling French-speaking Canadian magazine 7 days that Céline “does not have control of her muscles”. added that even if Céline wants to return to the stageshe doesn’t know what that will look like given her health.

“There are some who have lost hope because it is a disease that is not (very) known,” Claudette said 7 days. “What hurts me is that she was always disciplined. She always worked hard. Our mother always told her, ‘You’re going to do it right, you’re going to do it right.'”

What is stiff person syndrome (SPS)?

According to Stiff Person Syndrome FoundationThe disease affects the central nervous system, particularly the brain and spinal cord.

People with SPS “may be disabled, wheelchair-bound or bedridden, unable to work and care for themselves.” The syndrome is characterized by muscle spasms and rigidity, intense stiffness and pain.

SPS patients also have increased sensitivity to stimuli such as noise, touch and emotional distress, which can trigger spasms.

Although PSS is a rare disease, more people are affected than expected due to misdiagnosis. Overall, identification can take up to seven years.

SPS can often be confused multiple sclerosis, Parkinson’s disease, fibromyalgia, psychosomatic diseases, anxiety, phobia and other autoimmune diseases.

How Stiff Person Syndrome (SPS) Affects Celine Dion’s Singing Voice

In an Instagram clipthe singer shared that SPS had affected “every aspect of (her) daily life.”

“It sometimes causes me difficulty when I walk and doesn’t allow me to use my vocal cords to sing like I’m used to…I have to admit it’s been a struggle,” she said. declared.

PSS affects the muscles near Dion’s vocal cords, which can impact the sounds in her voice.

Dr. Marinos Dalakas, professor of neurology at Thomas Jefferson University in Philadelphia, said: CTV News Over the past year, several of his PSS patients have had persistent muscle stiffness.

“When it affects the diaphragm or the muscles of the larynx or vocal cords, the voice becomes very thin, it’s not loud, it’s fragmented,” he said.

“Singers may experience more stiffness, and because the voice is so important to them, the spasms are more concentrated there.”

What are the signs and symptoms of stiff person syndrome?

The typical symptoms Symptoms of PSS include muscle rigidity, hyper-stiffness, and “spasms of the muscles of the trunk, including the back and limbs.” The severity of the tremors varies from one episode to another.

Additionally, the neurological disease has autoimmune features that can also include “debilitating pain, chronic anxiety” and muscle spasms “so violent they can dislocate joints and even break bones.”

Typical symptoms of stiff person syndrome include muscle rigidity, hyper-stiffness, and pain.  (Photo via Getty Images)Typical symptoms of stiff person syndrome include muscle rigidity, hyper-stiffness, and pain.  (Photo via Getty Images)

Typical symptoms of stiff person syndrome include muscle rigidity, hyper-stiffness, and pain. (Photo via Getty Images)

In the preliminary stages PSS, spasms and stiffness can be subtle and fluctuate daily. There may be periods when symptoms seem stable, while other times they may be more noticeable and faster.

Sometimes muscle spasms can be brief and last a few minutes. However, they can also last for hours or days.

Other key traffic signs include changes in posture, increased stress and anxiety, and difficulty breathing.

If you or someone you know has any of the symptoms above, contact your doctor or healthcare professional as soon as possible.

Who is at risk for stiff person syndrome?

SPS is extremely rare and affected twice as many women as men. Symptoms can occur at any age but usually develop between the ages of 30 and 60.

The condition is usually partner with other autoimmune diseases such as vitiligo, diabetes, pernicious anemia and thyroiditis.

As a whole, health professionals are uncertain what exactly causes SPS, but some research indicates that it is the result of a faulty autoimmune response in the spinal cord and brain.

How is stiff person syndrome treated?

Home health nurse assisting nurse helping elderly woman with physical therapy at home, man walks down hallwayHome health nurse assisting nurse assisting elderly woman with physical therapy at home, man walks down hallway

Currently, there is no cure for stiff person syndrome. Treatment focuses on pain relief and symptom management. (Photo via Getty Images)

There is currently no cure for PSS. Treatment focuses on pain relief and symptom management associated with muscle spasms, such as physical therapy, a stretching and strengthening program, and massage therapy.

In some patients, immunotherapy and others drugs may help reduce stiffness, pain and specific autoimmune abnormalities. That said, most people with SPS have at least some degree of disability.

For depression and anxiety, mental health therapy is encouraged, as well as visiting a pain and chronic disease center for regular check-ups.

Can I prevent stiff person syndrome?

Since scientists don’t know what causes PSS, there is no surefire way to prevent this condition.

However, it is recommended that you do what you can to take care of your mental and physical health by managing stress, exercising regularly, getting enough sleep, and eating a healthy diet.

Let us know what you think by commenting below and tweeting @YahooStyleCA! follow us on Twitter And Instagram.


Source link

Scroll to Top